unexpected diagnoses
Have you received unexpected news following prenatal screening or simply need advice about your options? The following organisations can provide further information and support.
Resources
Through the Unexpected.
TTU works to protect the mental wellbeing of people who receive unexpected news regarding the health, development or genetics in their unborn baby.
www.throughtheunexpected.org.au
Prenatal Screening.
This site brings together information to support Health care professionals and better enable prospective parents to make informed choices about screening, diagnostic testing and continuing or terminating a pregnancy.
www.prenatalscreening.org.au/
https://yourchoice.mcri.edu.au/dashboard
Screening tests provide more information about the health of your baby. Learn about testing for chromosome conditions in pregnancy and what choices you may wish to discuss with your maternity care provider.
The Centre for Genetics Education. When a condition is found in an unborn baby: Information for families.
www.genetics.edu.au/SitePages/Pregnancy-support-resources.aspx
The Centre for Genetics Education. When your unborn baby has a problem: How to manage the weeks ahead.
https://www.genetics.edu.au/SitePages/Unborn-baby-problem.aspx
Genetics Alliance Australia.
Genetic Alliance Australia (GA) endeavours to facilitate contact between families/individuals affected by the same, or similar condition, and/or provide information about relevant support groups both nationally and internationally.
www.geneticalliance.org.au
Information about prenatal genetic testing:
https://www.vcgs.org.au
Resources
Through the Unexpected.
TTU works to protect the mental wellbeing of people who receive unexpected news regarding the health, development or genetics in their unborn baby.
www.throughtheunexpected.org.au
Prenatal Screening.
This site brings together information to support Health care professionals and better enable prospective parents to make informed choices about screening, diagnostic testing and continuing or terminating a pregnancy.
www.prenatalscreening.org.au/
https://yourchoice.mcri.edu.au/dashboard
Screening tests provide more information about the health of your baby. Learn about testing for chromosome conditions in pregnancy and what choices you may wish to discuss with your maternity care provider.
The Centre for Genetics Education. When a condition is found in an unborn baby: Information for families.
www.genetics.edu.au/SitePages/Pregnancy-support-resources.aspx
The Centre for Genetics Education. When your unborn baby has a problem: How to manage the weeks ahead.
https://www.genetics.edu.au/SitePages/Unborn-baby-problem.aspx
Genetics Alliance Australia.
Genetic Alliance Australia (GA) endeavours to facilitate contact between families/individuals affected by the same, or similar condition, and/or provide information about relevant support groups both nationally and internationally.
www.geneticalliance.org.au
Information about prenatal genetic testing:
https://www.vcgs.org.au
