COMMUNITY SUPPORT
psychological support victoria
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The Antenatal & Postnatal Psychology Network is a Melbourne wide network of independently practising psychologists. APPN psychologists are trained and experienced in supporting women and couples who have experienced perinatal loss, are struggling with pregnancy decision making, and who are adjusting to conception, pregnancy and parenting after loss
www.antenatalandpostnatalpsychology.com.au |
community support services
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RED NOSE, GRIEF & LOSS (formerly SIDS & KIDS)
Telephone: 1300 308 307 Email: [email protected] Red Nose (formerly Sids & Kids) offers services to those affected by the death of a baby or child who dies suddenly and unexpectedly regardless of the cause of death. Red Nose offers counselling (phone or face to face) as well as support groups for individuals/couples. RED NOSE (MENS' GRIEF SUPPORT LIBRARY): www.rednosegriefandloss.com.au/support/section/C347 www.rednosegriefandloss.com.au |
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SANDS
Telephone Support Line: 1300 072637 Email: [email protected] SANDS parent supporters are on call 24 hours a day/7 days a week. You can call the support line to speak to someone who understands miscarriage, stillbirth & neonatal death. SANDS is a national not-for-profit organisation providing peer support, information and education to bereaved parents and their families. SANDS dedicated male Volunteer Parent Supporters understand the grief and confusion dads may be experiencing, as they too have had a baby who has died. Perhaps you are a bereaved father/grandfather who would prefer to chat to another male about your grief. Or perhaps you are a bereaved mother or grandmother, or other family member who would like support to understand the grief experience from a male perspective. www.sands.org.au www.sands.org.au/male-parent-supporters |
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PINK ELEPHANTS SUPPORT NETWORK
Provides information and support for women through miscarriage, pregnancy loss and beyond. The group supports women through their grief, nurtures them as they heal and empower them as they move into the future. There are a number of resources available in their website including useful information about miscarriage stages, support brochures and downloadable resources. www.pinkelephantssupport.com |
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BEARS OF HOPE
Enquiries: 1300 11 HOPE Email: [email protected] Bears Of Hope Pregnancy & Infant Loss Support provides leading support and exceptional care for families who experience the loss of their baby. www.bearsofhope.org.au |
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Still Aware is committed to raising awareness of the statistics of stillbirth in Australia, working to end preventable stillbirth. Still Aware focuses on educating clinicians, mothers and families about stillbirth prevention and promotes open communication. They encourage and support dialogue around the realities of loss, in order to break the silence and taboo surrounding stillbirth.
Still Aware is invested in sharing stillbirth research and actively lobbies for stillbirth to be listed and remain on the policy agenda at a national level. They continue to work with key researchers in the field to gather and report data of care provisions already offered internationally, but which are not offered to Australian patients |
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STILLBIRTH FOUNDATION
Telephone: 02 9557 9070 The Stillbirth Foundation Australia is the only Australian charity dedicated to stillbirth research and has some wonderful online support. Whilst the Stillbirth Foundation is not a bereavement support program it is a leading research organisation striving to reduce the incidences of stillbirth. www.stillbirthfoundation.org.au |
SUPPORT FOR UNEXPECTED DIAGNOSES
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THROUGH THE UNEXPECTED
Prenatal diagnosis is more common than you may guess. Many expectant parents receive the news that their unborn baby has a difference in their health, development or genetics. This news is often unexpected. Many parents experience shock, distress and trauma upon hearing that their baby has an anomaly or variation that may lead to an altered development path, medical care or early death. At times it’s very hard to cope with the news or decisions, at times it’s very hard to cope with the way in which the news is delivered or how others respond. Parents face the barrage of complex health information to try and make sense of what the information means for their baby, self and family. The news often brings decisions about further tests and the option to continue or end the pregnancy, often a decision to be made when there is much uncertainty. For many, a diagnosis and decision may only be the start of the journey through the unexpected. https://throughtheunexpected.org.au/ |
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SUPPORT FOR TWIN TO TWIN TRANSFUSION SYNDROME Being diagnosed with Twin to Twin Transfusion Syndrome may be overwhelming. You will receive a lot of information about treatment options, where you are in the diagnosis of the syndrome and discuss a lot of “what ifs”. You may be wondering "Who can I turn to? Where can I find more information? I wonder if anyone else has gone through this?" Family and friends can be a wonderful source of support during this time, but it can become tiring explaining TTTS to each person. This website is made by a group of Australian parents who have experienced a pregnancy affected by TTTS and whose aim is to provide assistance to those who need it. The website provides education, support and awareness. https://twintotwintransfusionaustralia.com/ https://www.facebook.com/groups/1156841517738142 |
genetics services victoria
CLINICAL GENETICS SERVICE ROYAL WOMEN'S HOSPITAL
Telephone: 8345 2180
The clinical genetics service at the Women’s is a multidisciplinary team of clinical geneticists and genetic counsellors. The genetic counselling they offer provides education and support to couples and individuals who have or are at risk of genetic conditions.
www.thewomens.org.au/health-professionals/sexual-reproductive-health/reproductive-services-main/clinical-genetics-service
Telephone: 8345 2180
The clinical genetics service at the Women’s is a multidisciplinary team of clinical geneticists and genetic counsellors. The genetic counselling they offer provides education and support to couples and individuals who have or are at risk of genetic conditions.
www.thewomens.org.au/health-professionals/sexual-reproductive-health/reproductive-services-main/clinical-genetics-service
GENETICS CLINIC MONASH HEALTH
Telephone: 9594 2026
Email: [email protected]
The Genetics Clinic at Monash Hospital, as part of Monash Health, assists with the diagnosis, management, counselling and support of children and adults with a wide range of genetic disorders and also includes prenatal diagnosis for various genetic conditions.
www.monashhealth.org/services/services-a-e/genetics-clinic
Telephone: 9594 2026
Email: [email protected]
The Genetics Clinic at Monash Hospital, as part of Monash Health, assists with the diagnosis, management, counselling and support of children and adults with a wide range of genetic disorders and also includes prenatal diagnosis for various genetic conditions.
www.monashhealth.org/services/services-a-e/genetics-clinic
MERCY PERINATAL CLINICAL GENETICS SERVICES
Telephone: 8458 4248
Email: [email protected]
The Mercy Perinatal Genetics team comprise a highly skilled team of Medical Geneticists and Genetic Counsellors. Their role is to help families through the minefield of genetic screening and diagnostic testing, and to be the first ‘port of call’ when families are confronted with a diagnosis of structural or genetic abnormality in their unborn baby.
www.mercyperinatal.com/clinics/our-team?q=genetics
Telephone: 8458 4248
Email: [email protected]
The Mercy Perinatal Genetics team comprise a highly skilled team of Medical Geneticists and Genetic Counsellors. Their role is to help families through the minefield of genetic screening and diagnostic testing, and to be the first ‘port of call’ when families are confronted with a diagnosis of structural or genetic abnormality in their unborn baby.
www.mercyperinatal.com/clinics/our-team?q=genetics
SUPPORT FOR bereaved parents of MULTIPLES
Any of the above bereavement associations will provide support but in addition here are specific organisations around multiple birth
AUSTRALIAN MULTIPLE BIRTH ASSOCIATION (AMBA)
Email: [email protected]
Multiple Birth Association Bereavement Support Group (M-BABS) was formed to provide a means of communication for bereaved multiple birth families and surviving multiples and to act as a forum for sharing of information relating to the unique aspects of loss for a multiple birth family.
www.amba.org.au/bereavement.php
Email: [email protected]
Multiple Birth Association Bereavement Support Group (M-BABS) was formed to provide a means of communication for bereaved multiple birth families and surviving multiples and to act as a forum for sharing of information relating to the unique aspects of loss for a multiple birth family.
www.amba.org.au/bereavement.php
online pregnancy & infant loss support groups
THE PERINATAL LOSS CENTRE FACEBOOK SUPPORT GROUP
To join, register here: www.facebook.com/groups
SANDS ONLINE SUPPORT
https://www.sands.org.au/online-support
RED NOSE LIVE CHAT
https://rednosegriefandloss.org.au/live-chat
PREGNANCY AFTER A LOSS SUPPORT (PALS)
www.pregnancyafterlosssupport.com
A variety of support groups based on type of loss:
www.facebook.com/pg/pregnancyafterlosssupport/groups
BEREAVED MUMS TRYING TO CONCEIVE & PREGNANCY AFTER LOSS SUPPORT AUSTRALIA https://www.facebook.com/groups/159293240927262
BEARS OF HOPE
www.facebook.com/groups/bearsofhoperainbows
An AUSTRALIAN support group for mums and dads trying to conceive their rainbow baby or who are currently pregnant, following the loss of their baby.
CRISIS LINES (24 hour support)
